The Tuberous Sclerosis Association
Also known as: Tsa
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
Activities & Mission
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Higher than 17% of UK Beneficiary group charities with income £100K to £1M (sample: 851). How is this calculated?
Higher than 11% of UK Beneficiary group charities with income £100K to £1M. How is this calculated?
Lower overhead than 6% of UK Beneficiary group charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £656,551 | £468,469 | £314,512 | £1,299,561 | £718,782 | 9 / 40 |
| 2023 | £361,627 | £325,334 | 0 / 40 | |||
| 2022 | £284,640 | £359,049 | 0 / 10 | |||
| 2021 | £443,454 | £476,367 | 0 / 10 | |||
| 2020 | £418,746 | £614,314 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Tuberous Sclerosis Association
What does The Tuberous Sclerosis Association do?
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
How much income did The Tuberous Sclerosis Association report in 2024?
The Tuberous Sclerosis Association reported total income of £657k and reported expenditure of £468k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.
How efficient is The Tuberous Sclerosis Association?
The Tuberous Sclerosis Association has a program ratio of 47.9%, meaning that share of its income goes directly to charitable activities. This is higher than 17% of UK Beneficiary group charities with income £100K to £1M (sample of 851 charities). See our methodology for how this is calculated.
When was The Tuberous Sclerosis Association registered as a charity?
The Tuberous Sclerosis Association was registered with the Charity Commission for England and Wales on 14 September 1994 as charity number 1039549. It has been registered for 32 years.
Who runs The Tuberous Sclerosis Association?
The Tuberous Sclerosis Association is governed by a board of 7 trustees. The chair of trustees is Dr Frances Elmslie. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Tuberous Sclerosis Association operate?
The Tuberous Sclerosis Association operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Tuberous Sclerosis Association a registered charity?
Yes — The Tuberous Sclerosis Association is a registered charity in England and Wales, charity number 1039549.
Details
Courtenay House
Pynes Hill
EXETER
EX2 5AZ
Registry Information
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Major UK charities in the same primary sector, drawn from the curated priority cohort.
Trustees
Also governs 1 other charity
Also governs 1 other charity
Sectors & Classifications
Also Known As
- Tsa
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated