The Tuberous Sclerosis Association
Also known as: Tsa
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
Activities & Mission
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
Grants
The Tuberous Sclerosis Association makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £539,086
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- people with disabilities
- What it supports
- general charitable purposes, education and training, the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £477,773 | £539,086 | 0 / 40 | |||
| 2024 | £656,551 | £468,469 | £314,512 | £1,299,561 | £718,782 | 9 / 40 |
| 2023 | £361,627 | £325,334 | 0 / 40 | |||
| 2022 | £284,640 | £359,049 | 0 / 10 | |||
| 2021 | £443,454 | £476,367 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Tuberous Sclerosis Association
What does The Tuberous Sclerosis Association do?
The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.
How much income did The Tuberous Sclerosis Association report in 2025?
The Tuberous Sclerosis Association reported total income of £478k and reported expenditure of £539k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Tuberous Sclerosis Association registered as a charity?
The Tuberous Sclerosis Association was registered with the Charity Commission for England and Wales on 14 September 1994 as charity number 1039549. It has been registered for 32 years.
Who runs The Tuberous Sclerosis Association?
The Tuberous Sclerosis Association is governed by a board of 7 trustees. The chair of trustees is Dr Frances Elmslie. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Tuberous Sclerosis Association operate?
The Tuberous Sclerosis Association operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Tuberous Sclerosis Association a registered charity?
Yes — The Tuberous Sclerosis Association is a registered charity in England and Wales, charity number 1039549.
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Registry Information
Trustees
Also governs 1 other charity
Also governs 1 other charity
Also Known As
- Tsa
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated