Timothy Syndrome Alliance (tsa)
Also known as: Timothy Syndrome Alliance, Tsa
Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.
Activities & Mission
Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £205,304 | £128,996 | 0 / 4 | |||
| 2024 | £93,687 | £19,756 | 0 / 4 | |||
| 2023 | £21,405 | £12,305 | 0 / 1 | |||
| 2022 | £10,005 | £4,706 | 0 / 3 | |||
| 2021 | £6,084 | £3,226 | 0 / 2 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Timothy Syndrome Alliance (tsa)
What does Timothy Syndrome Alliance (tsa) do?
Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.
How much income did Timothy Syndrome Alliance (tsa) report in 2025?
Timothy Syndrome Alliance (tsa) reported total income of £205k and reported expenditure of £129k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Timothy Syndrome Alliance (tsa) registered as a charity?
Timothy Syndrome Alliance (tsa) was registered with the Charity Commission for England and Wales on 27 September 2019 as charity number 1185523. It has been registered for 7 years.
Who runs Timothy Syndrome Alliance (tsa)?
Timothy Syndrome Alliance (tsa) is governed by a board of 9 trustees. The chair of trustees is SOPHIE MUIR. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Timothy Syndrome Alliance (tsa) operate?
Timothy Syndrome Alliance (tsa) operates in England, as recorded in its Charity Commission filing.
Is Timothy Syndrome Alliance (tsa) a registered charity?
Yes — Timothy Syndrome Alliance (tsa) is a registered charity in England and Wales, charity number 1185523.
Details
Minchinhampton
Stroud
GL6 9JP
Registry Information
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Major UK charities in the same primary sector, drawn from the curated priority cohort.
Trustees
Sectors & Classifications
Also Known As
- Timothy Syndrome Alliance
- Tsa
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated