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timothy syndrome alliance (tsa)

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Activities & Mission

TIMOTHY SYNDROME ALLIANCE (TSA) IS A WORLDWIDE PATIENT GROUP ORGANISATION WHICH HELPS AND SUPPORTS INDIVIDUALS WITH CACNA1C-RELATED DISORDERS, INCLUDING TIMOTHY SYNDROME AND LONGQT8, AND THEIR FAMILIES/CARERS. WE RAISE AWARENESS TO DRIVE RESEARCH AND CLINICAL DEVELOPMENT TO ENHANCE SCIENTIFIC UNDERSTANDING TO FIND A CURE.

Fundraising

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Financial Information

Latest Income
£93,687
Latest Expenditure
£19,756

Financial Efficiency

Overall Efficiency 21.1%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 21.1%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£93,687£19,7560 / 4
2023£21,405£12,3050 / 1
2022£10,005£4,7060 / 3
2021£6,084£3,2260 / 2
2020£1,900£470 / 1

Staff column shows: Employees / Volunteers

Details

Address
8 Butt Street
Minchinhampton
Stroud
GL6 9JP
Registration Date
27 September 2019
Status
Registered

Registry Information

Organisation Number
5143990
Charity Number
1185523

Trustees

SOPHIE MUIR
Nicholas Muir
Meg McLaughlin
Galina Gardiner
Gemma Duncan
Susan Bresnahan
Achsah James
Dr Christine Ziegler
Glenn Miller

Sectors & Classifications

Also Known As

  • TSA
  • TIMOTHY SYNDROME ALLIANCE