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Tofs

Also known as: T O F S, Tracheo-Oesophageal Fistula Support

Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.

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Activities & Mission

Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£175,039
Latest Expenditure
£191,531

Financial Efficiency

Expenditure Ratio 109.4%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£175,039
£191,5310 / 47
2024
£222,536
£189,7160 / 45
2023
£149,765
£171,7000 / 46
2022
£151,779
£183,8480 / 55
2021
£189,481
£131,9830 / 53

Staff column shows: Employees / Volunteers

Frequently asked questions about Tofs

What does Tofs do?

Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.

How much income did Tofs report in 2025?

Tofs reported total income of £175k and reported expenditure of £192k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Tofs registered as a charity?

Tofs was registered with the Charity Commission for England and Wales on 3 March 1988 as charity number 327735. It has been registered for 38 years.

Who runs Tofs?

Tofs is governed by a board of 6 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Tofs operate?

Tofs operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Tofs a registered charity?

Yes — Tofs is a registered charity in England and Wales, charity number 327735.

Details

Contact (address, phone)
Registration Date
3 March 1988
Status
Registered

Registry Information

Organisation Number
327735
Charity Number
327735

Trustees

Clare Louise Johns
Darrell Hill
DUNCAN CARL JACKSON
Also governs 1 other charity
Katrina Marie Tyler
Also governs 1 other charity
Tamasine Swan
To'neill Bala

Sectors & Classifications

Also Known As

  • T O F S
  • Tracheo-Oesophageal Fistula Support

Data & trust

Register data refreshed
2 November 2026
Report a data issue