UK Infantile Spasms Trust
Also known as: Ukist - UK Infantile Spasms Trust
Raising money to help families who have children who suffer from spasms with support and care.
Activities & Mission
Raising money to help families who have children who suffer from spasms with support and care.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £87,099 | £40,354 | 0 / 0 | |||
| 2024 | £44,248 | £23,833 | 0 / 5 | |||
| 2023 | £23,820 | £16,025 | 0 / 0 | |||
| 2022 | £45,795 | £16,830 | 0 / 0 | |||
| 2021 | £40,081 | £15,949 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about UK Infantile Spasms Trust
What does UK Infantile Spasms Trust do?
Raising money to help families who have children who suffer from spasms with support and care.
How much income did UK Infantile Spasms Trust report in 2025?
UK Infantile Spasms Trust reported total income of £87k and reported expenditure of £40k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was UK Infantile Spasms Trust registered as a charity?
UK Infantile Spasms Trust was registered with the Charity Commission for England and Wales on 21 March 2017 as charity number 1172167. It has been registered for 9 years.
Who runs UK Infantile Spasms Trust?
UK Infantile Spasms Trust is governed by a board of 9 trustees. The chair of trustees is Amy Louise Dowding. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does UK Infantile Spasms Trust operate?
UK Infantile Spasms Trust operates in England And Wales, as recorded in its Charity Commission filing.
Is UK Infantile Spasms Trust a registered charity?
Yes — UK Infantile Spasms Trust is a registered charity in England and Wales, charity number 1172167.
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Registry Information
Trustees
Also Known As
- Ukist - UK Infantile Spasms Trust
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated