Vhl Uk/ireland
The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
Activities & Mission
The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
Grants
Vhl Uk/ireland is a grant-making charity: making grants is its main activity.
- Total spending (2025)
- £38,915
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- people with disabilities
- What it supports
- the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £20,076 | £38,915 | 0 / 20 | |||
| 2024 | £38,000 | £1,900 | 0 / 20 | |||
| 2022 | £18,131 | £801 | 0 / 0 | |||
| 2021 | £34,824 | £60,619 | 0 / 2 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Vhl Uk/ireland
What does Vhl Uk/ireland do?
The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
How much income did Vhl Uk/ireland report in 2025?
Vhl Uk/ireland reported total income of £20k and reported expenditure of £39k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Vhl Uk/ireland registered as a charity?
Vhl Uk/ireland was registered with the Charity Commission for England and Wales on 9 February 2015 as charity number 1160381. It has been registered for 11 years.
Who runs Vhl Uk/ireland?
Vhl Uk/ireland is governed by a board of 13 trustees. The chair of trustees is Mark Ashley Lodge. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Vhl Uk/ireland operate?
Vhl Uk/ireland operates across 4 areas: Ireland, Northern Ireland, Scotland and England And Wales.
Is Vhl Uk/ireland a registered charity?
Yes — Vhl Uk/ireland is a registered charity in England and Wales, charity number 1160381.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated