Wolfram Syndrome UK
Also known as: Wsuk
WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.
Activities & Mission
WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profiles See a sample profileAreas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2026.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2026 | £135,198 | £138,772 | 0 / 1 | |||
| 2025 | £121,228 | £139,723 | 0 / 0 | |||
| 2024 | £136,399 | £113,865 | 0 / 0 | |||
| 2023 | £108,116 | £64,911 | 0 / 6 | |||
| 2022 | £43,157 | £48,197 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Wolfram Syndrome UK
What does Wolfram Syndrome UK do?
WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.
How much income did Wolfram Syndrome UK report in 2026?
Wolfram Syndrome UK reported total income of £135k and reported expenditure of £139k for the financial year ending 2026, based on the most recent annual return filed with the Charity Commission.
When was Wolfram Syndrome UK registered as a charity?
Wolfram Syndrome UK was registered with the Charity Commission for England and Wales on 17 June 2013 as charity number 1152445. It has been registered for 13 years.
Who runs Wolfram Syndrome UK?
Wolfram Syndrome UK is governed by a board of 5 trustees. The chair of trustees is John Isherwood. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Wolfram Syndrome UK operate?
Wolfram Syndrome UK operates across 3 areas: Ireland, Scotland and England And Wales.
Is Wolfram Syndrome UK a registered charity?
Yes — Wolfram Syndrome UK is a registered charity in England and Wales, charity number 1152445.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profiles See a sample profileDetails
Registry Information
Trustees
Also Known As
- Wsuk
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated