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wolfram syndrome uk

The charity supports children and young people and people with disabilities. Wolfram Syndrome UK is a registered charity whose purpose is general charitable purposes. It delivers its work by providing services. The charity is based in Worthing and operates in England And Wales, Ireland, and Scotland.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.

Fundraising

See where Wolfram Syndrome UK is active and find local fundraising opportunities.

Financial Information

Latest Income
£136,399
Latest Expenditure
£113,865

Financial Efficiency

Overall Efficiency 83.5%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 83.5%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£136,399£113,8650 / 0
2023£108,116£64,9110 / 6
2022£43,157£48,1970 / 0
2021£38,254£46,0820 / 0
2020£61,187£45,4900 / 5

Staff column shows: Employees / Volunteers

Details

Address
9 Church Way
Worthing
BN13 1HD
Registration Date
17 June 2013
Status
Registered

Registry Information

Organisation Number
5034291
Charity Number
1152445

Trustees

PAUL LYNCH
PROF TIM BARRETT
ALAN NYE
John Isherwood
Abby Gardner

Also Known As

  • WSUK