xlh uk
The charity supports people with disabilities. Xlh UK is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by providing advocacy, advice, or information. The charity is based in Herefordshire and operates in England And Wales, Ireland, and various other locations.
This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.
Activities & Mission
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
Fundraising
See where Xlh UK is active and find local fundraising opportunities.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £13,252 | £15,824 | 0 / 1 | |||
| 2024 | £18,408 | £24,359 | 0 / 2 | |||
| 2023 | £23,082 | £27,539 | 0 / 0 |
Staff column shows: Employees / Volunteers
Details
KINGTON
Herefordshire
HR5 3DJ
Registry Information
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