Xlh UK
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
Activities & Mission
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2026.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2026 | £23,756 | £14,824 | 0 / 6 | |||
| 2025 | £13,252 | £15,824 | 0 / 1 | |||
| 2024 | £18,408 | £24,359 | 0 / 2 | |||
| 2023 | £23,082 | £27,539 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Xlh UK
What does Xlh UK do?
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
How much income did Xlh UK report in 2026?
Xlh UK reported total income of £24k and reported expenditure of £15k for the financial year ending 2026, based on the most recent annual return filed with the Charity Commission.
When was Xlh UK registered as a charity?
Xlh UK was registered with the Charity Commission for England and Wales on 29 November 2021 as charity number 1196811. It has been registered for 5 years.
Who runs Xlh UK?
Xlh UK is governed by a board of 7 trustees. The chair of trustees is Sarah Mitson. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Xlh UK operate?
Xlh UK operates across 6 areas, including Guernsey, Isle Of Man, Jersey and 3 others. The full list is shown on its profile.
Is Xlh UK a registered charity?
Yes — Xlh UK is a registered charity in England and Wales, charity number 1196811.
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Registry Information
Trustees
Also governs 1 other charity
Data & trust
- Register data refreshed
- 9 November 2026
- Methodology
- How metrics are calculated