xlh uk

Activities & Mission

XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.

Fundraising

See where Xlh UK is active and find local fundraising opportunities.

Financial Information