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alstrom syndrome europe

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Activities & Mission

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

Fundraising

See where Alstrom Syndrome Europe is active and find local fundraising opportunities.

Financial Information

Latest Income
£0
Latest Expenditure
£732

Financial Efficiency

Overall Efficiency Infinity%
% of expenditure going to programs (vs overhead)
Expenditure Ratio Infinity%
Expenditure as % of income

Details

Address
4 St. Kitts Close
TORQUAY
TQ2 7GD
Registration Date
5 February 2015
Status
Registered

Registry Information

Organisation Number
5050069
Charity Number
1160362

Trustees

DR HIWOT
DR MAFFEI
Professor Diana Valverde
Dr SELMA DUZENLI
Bernd Rosenbichler
Kerry Leeson-Beevers

Sectors & Classifications

Also Known As

  • AS EU