Alstrom Syndrome Europe
Also known as: As EU
Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.
Activities & Mission
Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Frequently asked questions about Alstrom Syndrome Europe
What does Alstrom Syndrome Europe do?
Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.
When was Alstrom Syndrome Europe registered as a charity?
Alstrom Syndrome Europe was registered with the Charity Commission for England and Wales on 5 February 2015 as charity number 1160362. It has been registered for 11 years.
Who runs Alstrom Syndrome Europe?
Alstrom Syndrome Europe is governed by a board of 5 trustees. The chair of trustees is DR MAFFEI. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Alstrom Syndrome Europe operate?
Alstrom Syndrome Europe operates across 16 areas, including Austria, Belgium, Cyprus and 13 others. The full list is shown on its profile.
Is Alstrom Syndrome Europe a registered charity?
Yes — Alstrom Syndrome Europe is a registered charity in England and Wales, charity number 1160362.
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Also governs 1 other charity
Also Known As
- As EU
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated