alstrom syndrome europe
Activities & Mission
Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.
Fundraising
See where Alstrom Syndrome Europe is active and find local fundraising opportunities.
Financial Information
Latest Income
£0
Latest Expenditure
£732
Financial Efficiency
Overall Efficiency Infinity%
% of expenditure going to programs (vs overhead)
Expenditure Ratio Infinity%
Expenditure as % of income
Details
Address
4 St. Kitts Close
TORQUAY
TQ2 7GD
TORQUAY
TQ2 7GD
Website
www.alstrom.org.ukRegistration Date
5 February 2015
Status
Registered
Registry Information
Organisation Number
5050069
Charity Number
1160362
Trustees
DR HIWOT
DR MAFFEI
Professor Diana Valverde
Dr SELMA DUZENLI
Bernd Rosenbichler
Kerry Leeson-Beevers
Sectors & Classifications
Also Known As
- AS EU