Ciliopathy Alliance
Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.
Activities & Mission
Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2021.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2021 | £24,148 | £357 | 0 / 3 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Ciliopathy Alliance
What does Ciliopathy Alliance do?
Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.
How much income did Ciliopathy Alliance report in 2021?
Ciliopathy Alliance reported total income of £24k and reported expenditure of £357.00 for the financial year ending 2021, based on the most recent annual return filed with the Charity Commission.
When was Ciliopathy Alliance registered as a charity?
Ciliopathy Alliance was registered with the Charity Commission for England and Wales on 10 July 2012 as charity number 1148034. It has been registered for 14 years.
Who runs Ciliopathy Alliance?
Ciliopathy Alliance is governed by a board of 7 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Ciliopathy Alliance operate?
Ciliopathy Alliance operates in England And Wales, as recorded in its Charity Commission filing.
Is Ciliopathy Alliance a registered charity?
Yes — Ciliopathy Alliance is a registered charity in England and Wales, charity number 1148034.
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Registry Information
Trustees
Also governs 1 other charity
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated