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international prader-willi syndrome organisation

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Activities & Mission

IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.

Fundraising

See where International Prader-Willi Syndrome Organisation is active and find local fundraising opportunities.

Financial Information

Latest Income
£245,224
Latest Expenditure
£217,254

Financial Efficiency

Overall Efficiency 88.6%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 88.6%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£245,224£217,2540 / 52
2023£163,599£159,4310 / 52
2022£330,670£268,3400 / 23
2021£246,585£161,9150 / 13
2020£106,098£69,8320 / 10

Staff column shows: Employees / Volunteers

Details

Address
IPWSO
Salisbury House
2-3 Salisbury Villas
CAMBRIDGE
CB1 2LA
Registration Date
9 April 2019
Status
Registered

Registry Information

Organisation Number
5124256
Charity Number
1182873

Trustees

Lantz Yap Chee Seng
Scott Arant
Tunde Baloghne Liplin
Dr Nathalie Kayadjanian
Karin Clarke
Professor Nicholas Finer
Jackie Lodge
Dagmar Kiderlen
Johana Quinn
Patrice Carroll
Brett Peter Thompson
Liane Oliveira Mufarrej Motta

Sectors & Classifications

Also Known As

  • IPWSO