International Prader-Willi Syndrome Organisation
Also known as: Ipwso
IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.
Activities & Mission
IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.
Grants
International Prader-Willi Syndrome Organisation makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £220,970
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- other defined groups
- What it supports
- the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £206,698 | £220,970 | 0 / 52 | |||
| 2024 | £245,224 | £217,254 | 0 / 52 | |||
| 2023 | £163,599 | £159,431 | 0 / 52 | |||
| 2022 | £330,670 | £268,340 | 0 / 23 | |||
| 2021 | £246,585 | £161,915 | 0 / 13 |
Staff column shows: Employees / Volunteers
Frequently asked questions about International Prader-Willi Syndrome Organisation
What does International Prader-Willi Syndrome Organisation do?
IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.
How much income did International Prader-Willi Syndrome Organisation report in 2025?
International Prader-Willi Syndrome Organisation reported total income of £207k and reported expenditure of £221k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was International Prader-Willi Syndrome Organisation registered as a charity?
International Prader-Willi Syndrome Organisation was registered with the Charity Commission for England and Wales on 9 April 2019 as charity number 1182873. It has been registered for 7 years.
Who runs International Prader-Willi Syndrome Organisation?
International Prader-Willi Syndrome Organisation is governed by a board of 12 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does International Prader-Willi Syndrome Organisation operate?
International Prader-Willi Syndrome Organisation operates across 40 areas, including Argentina, Australia, Austria and 37 others. The full list is shown on its profile.
Is International Prader-Willi Syndrome Organisation a registered charity?
Yes — International Prader-Willi Syndrome Organisation is a registered charity in England and Wales, charity number 1182873.
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Registry Information
Trustees
Also Known As
- Ipwso
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated