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international prader-willi syndrome organisation

The charity supports other defined groups. International Prader-Willi Syndrome Organisation is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by making grants to individuals. The charity is based in Cambridge and operates in England And Wales, Argentina, and various other locations.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.

Fundraising

See where International Prader-Willi Syndrome Organisation is active and find local fundraising opportunities.

Financial Information

Latest Income
£245,224
Latest Expenditure
£217,254

Financial Efficiency

Overall Efficiency 88.6%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 88.6%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£245,224£217,2540 / 52
2023£163,599£159,4310 / 52
2022£330,670£268,3400 / 23
2021£246,585£161,9150 / 13
2020£106,098£69,8320 / 10

Staff column shows: Employees / Volunteers