Myaware
Also known as: Myasthenia Gravis Association
The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.
Activities & Mission
The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.
Grants
Myaware makes grants as part of its work.
- Gives grants to
- organisations
- Grants paid (2024)
- £505,511
- Who it helps
- people with disabilities, other charities or voluntary bodies and the general public
- What it supports
- general charitable purposes, education and training, the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2016 — Swale Charity Trust (organisation 298925)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £449,135 | £1,054,088 | 0 / 0 | |||
| 2024 | £1,178,400 | £1,068,135 | £1,055,480 | £2,140,950 | £1,033,039 | 18 / 0 |
| 2023 | £329,444 | £716,633 | 0 / 0 | |||
| 2022 | £706,905 | £1,022,153 | £1,012,654 | £2,406,293 | £1,716,258 | 19 / 80 |
| 2021 | £992,799 | £1,052,417 | £1,042,088 | £2,703,049 | £1,227,680 | 24 / 80 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Myaware
What does Myaware do?
The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.
How much income did Myaware report in 2025?
Myaware reported total income of £449k and reported expenditure of £1.05m for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Myaware registered as a charity?
Myaware was registered with the Charity Commission for England and Wales on 19 May 1995 as charity number 1046443. It has been registered for 31 years.
Who runs Myaware?
Myaware is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Myaware operate?
Myaware operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Myaware a registered charity?
Yes — Myaware is a registered charity in England and Wales, charity number 1046443.
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Registry Information
Trustees
Also governs 1 other charity
Also governs 1 other charity
Also Known As
- Myasthenia Gravis Association
- Myaware
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated