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Myaware

Also known as: Myasthenia Gravis Association

The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.

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Activities & Mission

The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£449,135
Latest Expenditure
£1,054,088

Financial Efficiency

Program Ratio 89.6%
% of income going directly to charitable activities

Higher than 49% of UK Beneficiary group charities with income £100K to £1M (sample: 3459). How is this calculated?

Overall Efficiency 98.8%
% of expenditure going to programs (vs overhead)

Higher than 52% of UK Beneficiary group charities with income £100K to £1M. How is this calculated?

Administrative Ratio 3.0%
Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 41% of UK Beneficiary group charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £972,242
Charitable Activities £0
Other Trading £119,736
Investments £86,422
Other Income £0

Expenditure Categories

Charitable Expenditure £1,055,480
Raising Funds £12,655
Governance £19,355
Grants to Institutions £505,511
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

The Commission record shows this related event on the register:

  • Asset transfer in in 2016 — Swale Charity Trust (organisation 298925)
Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£449,135
£1,054,0880 / 0
2024
£1,178,400
£1,068,135£1,055,480£2,140,950£1,033,03918 / 0
2023
£329,444
£716,6330 / 0
2022
£706,905
£1,022,153£1,012,654£2,406,293£1,716,25819 / 80
2021
£992,799
£1,052,417£1,042,088£2,703,049£1,227,68024 / 80

Staff column shows: Employees / Volunteers

Frequently asked questions about Myaware

What does Myaware do?

The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families. It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.

How much income did Myaware report in 2025?

Myaware reported total income of £449k and reported expenditure of £1.05m for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

How efficient is Myaware?

Myaware has a program ratio of 89.6%, meaning that share of its income goes directly to charitable activities. This is higher than 49% of UK Beneficiary group charities with income £100K to £1M (sample of 3459 charities). See our methodology for how this is calculated.

When was Myaware registered as a charity?

Myaware was registered with the Charity Commission for England and Wales on 19 May 1995 as charity number 1046443. It has been registered for 31 years.

Who runs Myaware?

Myaware is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Myaware operate?

Myaware operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Myaware a registered charity?

Yes — Myaware is a registered charity in England and Wales, charity number 1046443.

Details

Address
myaware
College Business Centre
The College
Uttoxeter New Road
DERBY
DE22 3WZ
Registration Date
19 May 1995
Status
Registered

Registry Information

Organisation Number
1046443
Charity Number
1046443

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Trustees

ANDREW JOHN ROBINSON
Claire Wen
DR Bethan Lang
Dr Channa Hewamadduma
Also governs 1 other charity
Dr Katherine Dodd
Dr SAIJU JACOB
Jon Rio
Rashmi Rungta
Also governs 1 other charity
Sara Jones

Sectors & Classifications

Also Known As

  • Myasthenia Gravis Association
  • Myaware

Data & trust

Register data refreshed
14 May 2026
Report a data issue