Spinal Muscular Atrophy UK
Also known as: Spinal Muscular Atrophy Support UK, The Jennifer Trust for Spinal Muscular Atrophy, Spinal Muscular Atrophy UK the Jennifer Trust
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
Activities & Mission
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £1,623,545 | £1,359,898 | £1,076,663 | £1,245,954 | £586,060 | 16 / 30 |
| 2024 | £1,263,853 | £937,860 | £734,470 | £982,307 | £548,837 | 17 / 30 |
| 2023 | £924,673 | £857,523 | £688,112 | £656,314 | £443,941 | 15 / 150 |
| 2022 | £839,420 | £715,466 | £553,595 | £589,164 | £548,837 | 12 / 150 |
| 2021 | £724,691 | £575,342 | £429,729 | £465,210 | £468,926 | 12 / 150 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Spinal Muscular Atrophy UK
What does Spinal Muscular Atrophy UK do?
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
How much income did Spinal Muscular Atrophy UK report in 2025?
Spinal Muscular Atrophy UK reported total income of £1.62m and reported expenditure of £1.36m for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Spinal Muscular Atrophy UK registered as a charity?
Spinal Muscular Atrophy UK was registered with the Charity Commission for England and Wales on 17 November 2004 as charity number 1106815. It has been registered for 22 years.
Who runs Spinal Muscular Atrophy UK?
Spinal Muscular Atrophy UK is governed by a board of 14 trustees. The chair of trustees is Dr Gordon Harvey. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Spinal Muscular Atrophy UK operate?
Spinal Muscular Atrophy UK operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Spinal Muscular Atrophy UK a registered charity?
Yes — Spinal Muscular Atrophy UK is a registered charity in England and Wales, charity number 1106815.
Details
Stratford Enterprise Park
Timothy's Bridge Road
Stratford-upon-Avon
CV37 9NQ
Registry Information
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Also governs 1 other charity
Also governs 1 other charity
Also Known As
- Spinal Muscular Atrophy Support UK
- The Jennifer Trust for Spinal Muscular Atrophy
- Spinal Muscular Atrophy UK the Jennifer Trust
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated