Spinal Muscular Atrophy UK
Also known as: Spinal Muscular Atrophy Support UK, The Jennifer Trust for Spinal Muscular Atrophy, Spinal Muscular Atrophy UK the Jennifer Trust
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
Activities & Mission
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
Grants
Spinal Muscular Atrophy UK makes grants as part of its work.
- Gives grants to
- individuals
- Total spending (2026)
- £1,471,142
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- people with disabilities and other defined groups
- What it supports
- the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2026.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2026 | £1,304,956 | £1,471,142 | £1,154,573 | £1,077,596 | £493,108 | 19 / 40 |
| 2025 | £1,623,545 | £1,359,898 | £1,076,663 | £1,245,954 | £586,060 | 16 / 30 |
| 2024 | £1,263,853 | £937,860 | £734,470 | £982,307 | £548,837 | 17 / 30 |
| 2023 | £924,673 | £857,523 | £688,112 | £656,314 | £443,941 | 15 / 150 |
| 2022 | £839,420 | £715,466 | £553,595 | £589,164 | £548,837 | 12 / 150 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Spinal Muscular Atrophy UK
What does Spinal Muscular Atrophy UK do?
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
How much income did Spinal Muscular Atrophy UK report in 2026?
Spinal Muscular Atrophy UK reported total income of £1.30m and reported expenditure of £1.47m for the financial year ending 2026, based on the most recent annual return filed with the Charity Commission.
When was Spinal Muscular Atrophy UK registered as a charity?
Spinal Muscular Atrophy UK was registered with the Charity Commission for England and Wales on 17 November 2004 as charity number 1106815. It has been registered for 22 years.
Who runs Spinal Muscular Atrophy UK?
Spinal Muscular Atrophy UK is governed by a board of 13 trustees. The chair of trustees is Dr Gordon Harvey. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Spinal Muscular Atrophy UK operate?
Spinal Muscular Atrophy UK operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Spinal Muscular Atrophy UK a registered charity?
Yes — Spinal Muscular Atrophy UK is a registered charity in England and Wales, charity number 1106815.
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Registry Information
Trustees
Also governs 1 other charity
Also governs 1 other charity
Also Known As
- Spinal Muscular Atrophy Support UK
- The Jennifer Trust for Spinal Muscular Atrophy
- Spinal Muscular Atrophy UK the Jennifer Trust
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated