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spinal muscular atrophy uk

The charity supports people with disabilities and other defined groups. Spinal Muscular Atrophy UK is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by making grants to individuals. The charity is based in Warwickshire and operates in England And Wales, Scotland, and Northern Ireland.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.

Fundraising

See where Spinal Muscular Atrophy UK is active and find local fundraising opportunities.

Financial Information

Latest Income
£1,623,545
Latest Expenditure
£1,359,898

Financial Efficiency

Program Ratio 66.3%
% of income going directly to charitable activities
Overall Efficiency 79.2%
% of expenditure going to programs (vs overhead)
Administrative Ratio 28.2%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £1,608,348
Charitable Activities £0
Other Trading £3,788
Investments £11,409
Other Income £0

Expenditure Categories

Charitable Expenditure £1,076,663
Raising Funds £283,235
Governance £100,111
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025£1,623,545£1,359,898£1,076,663£1,245,954£586,06016 / 30
2024£1,263,853£937,860£734,470£982,307£548,83717 / 30
2023£924,673£857,523£688,112£656,314£443,94115 / 150
2022£839,420£715,466£553,595£589,164£548,83712 / 150
2021£724,691£575,342£429,729£465,210£468,92612 / 150

Staff column shows: Employees / Volunteers

Details

Address
Unit 9 Shottery Brook Office Park
Timothys Bridge Road
Stratford Enterprise Park
STRATFORD-UPON-AVON
Warwickshire
CV37 9NR
Registration Date
17 November 2004
Status
Registered

Registry Information

Organisation Number
4010341
Charity Number
1106815

Trustees

Mark Taro Dearlove
Lauren Elizabeth Jane West
Alistair Mark Emslie Smith
Srinivas Madipalli
Dr Anne Marie Childs
Karin Yvette Edwards
Tracey Jane Bailey Burnley
Ben Hugh Williams
Maryann Madayag Aspinall
Jennie Elizabeth Sheehan Sheehan
Dr Hassan Sobati
Daniel Hardy William Worrall
Robin Jackson
Dr Gordon Harvey

Also Known As

  • THE JENNIFER TRUST FOR SPINAL MUSCULAR ATROPHY
  • SPINAL MUSCULAR ATROPHY UK THE JENNIFER TRUST
  • SPINAL MUSCULAR ATROPHY SUPPORT UK