Pompe Support Network
Also known as: Psn
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
Activities & Mission
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
Grants
Pompe Support Network makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £68,326
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, elderly people and people with disabilities
- What it supports
- the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £93,540 | £68,326 | 0 / 5 | |||
| 2024 | £71,896 | £61,256 | 0 / 5 | |||
| 2023 | £92,276 | £74,506 | 0 / 2 | |||
| 2022 | £79,526 | £118,709 | 0 / 6 | |||
| 2021 | £93,292 | £45,332 | 0 / 5 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Pompe Support Network
What does Pompe Support Network do?
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
How much income did Pompe Support Network report in 2025?
Pompe Support Network reported total income of £94k and reported expenditure of £68k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Pompe Support Network registered as a charity?
Pompe Support Network was registered with the Charity Commission for England and Wales on 15 November 2019 as charity number 1186383. It has been registered for 7 years.
Who runs Pompe Support Network?
Pompe Support Network is governed by a board of 9 trustees. The chair of trustees is Allan David John Muir. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Pompe Support Network operate?
Pompe Support Network operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Pompe Support Network a registered charity?
Yes — Pompe Support Network is a registered charity in England and Wales, charity number 1186383.
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Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
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Registry Information
Trustees
Also governs 1 other charity
Also Known As
- Psn
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated