UK Lysosomal Storage Disorder Collaborative
Also known as: Lsd Collaborative
The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas.
Activities & Mission
The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £40,000 | £18,299 | 0 / 2 | |||
| 2024 | £0 | £0 | 0 / 0 | |||
| 2023 | £0 | £0 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about UK Lysosomal Storage Disorder Collaborative
What does UK Lysosomal Storage Disorder Collaborative do?
The UK Lysosomal Storage Disorder Collaborative (LSD Collaborative) was established to advance health, relieve sickness and enhance the wellbeing of those affected by LSDs and other rare disorders, plus their families and carers, to advance education and to stimulate the interest in all matters concerning these diseases, anywhere in the UK and/or overseas.
How much income did UK Lysosomal Storage Disorder Collaborative report in 2025?
UK Lysosomal Storage Disorder Collaborative reported total income of £40k and reported expenditure of £18k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was UK Lysosomal Storage Disorder Collaborative registered as a charity?
UK Lysosomal Storage Disorder Collaborative was registered with the Charity Commission for England and Wales on 24 November 2022 as charity number 1201132. It has been registered for 4 years.
Who runs UK Lysosomal Storage Disorder Collaborative?
UK Lysosomal Storage Disorder Collaborative is governed by a board of 5 trustees. The chair of trustees is Toni Angela Mathieson. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does UK Lysosomal Storage Disorder Collaborative operate?
UK Lysosomal Storage Disorder Collaborative operates in England And Wales, as recorded in its Charity Commission filing.
Is UK Lysosomal Storage Disorder Collaborative a registered charity?
Yes — UK Lysosomal Storage Disorder Collaborative is a registered charity in England and Wales, charity number 1201132.
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Registry Information
Trustees
Also governs 1 other charity
Also Known As
- Lsd Collaborative
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated