Primary Ciliary Dyskinesia Support UK
Also known as: Pcd Family Support Group, Primary Ciliary Dyskinesia (pcd) Family Support Group, Pcd Support UK
1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
Activities & Mission
1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
Grants
Primary Ciliary Dyskinesia Support UK makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2024)
- £41,020
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- people with disabilities
- What it supports
- the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £66,445 | £41,020 | 0 / 10 | |||
| 2023 | £20,511 | £51,272 | 0 / 10 | |||
| 2022 | £36,913 | £25,308 | 0 / 5 | |||
| 2021 | £54,967 | £16,949 | 0 / 3 | |||
| 2020 | £33,209 | £9,759 | 0 / 3 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Primary Ciliary Dyskinesia Support UK
What does Primary Ciliary Dyskinesia Support UK do?
1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
How much income did Primary Ciliary Dyskinesia Support UK report in 2024?
Primary Ciliary Dyskinesia Support UK reported total income of £66k and reported expenditure of £41k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.
When was Primary Ciliary Dyskinesia Support UK registered as a charity?
Primary Ciliary Dyskinesia Support UK was registered with the Charity Commission for England and Wales on 17 October 1995 as charity number 1049931. It has been registered for 31 years.
Who runs Primary Ciliary Dyskinesia Support UK?
Primary Ciliary Dyskinesia Support UK is governed by a board of 4 trustees. The chair of trustees is Katie Dexter. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Primary Ciliary Dyskinesia Support UK operate?
Primary Ciliary Dyskinesia Support UK operates across 2 areas: Scotland and England And Wales.
Is Primary Ciliary Dyskinesia Support UK a registered charity?
Yes — Primary Ciliary Dyskinesia Support UK is a registered charity in England and Wales, charity number 1049931.
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Registry Information
Trustees
Also governs 1 other charity
Also Known As
- Pcd Family Support Group
- Primary Ciliary Dyskinesia (pcd) Family Support Group
- Pcd Support UK
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated