Primary Ciliary Dyskinesia Support UK
Also known as: Pcd Support UK
1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
Activities & Mission
1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
Grants
Primary Ciliary Dyskinesia Support UK is a grant-making charity: making grants is its main activity.
- Gives grants to
- organisations and individuals
- Who it helps
- people with disabilities
- What it supports
- the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £0 | £0 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Primary Ciliary Dyskinesia Support UK
What does Primary Ciliary Dyskinesia Support UK do?
1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.
When was Primary Ciliary Dyskinesia Support UK registered as a charity?
Primary Ciliary Dyskinesia Support UK was registered with the Charity Commission for England and Wales on 6 March 2024 as charity number 1207340. It has been registered for 2 years.
Who runs Primary Ciliary Dyskinesia Support UK?
Primary Ciliary Dyskinesia Support UK is governed by a board of 5 trustees. The chair of trustees is Alexander Simon Polak. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Primary Ciliary Dyskinesia Support UK operate?
Primary Ciliary Dyskinesia Support UK operates across 3 areas: Northern Ireland, Scotland and England.
Is Primary Ciliary Dyskinesia Support UK a registered charity?
Yes — Primary Ciliary Dyskinesia Support UK is a registered charity in England and Wales, charity number 1207340.
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Registry Information
Trustees
Also governs 1 other charity
Also Known As
- Pcd Support UK
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated