alex, the leukodystrophy charity
Activities & Mission
A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.
Fundraising
See where Alex, The Leukodystrophy Charity is active and find local fundraising opportunities.
Country
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Region
Financial Information
Latest Income
£965,218
Latest Expenditure
£972,157
Financial Efficiency
Program Ratio 28.3%
% of income going directly to charitable activities
Overall Efficiency 28.1%
% of expenditure going to programs (vs overhead)
Administrative Ratio 73.1%
Overhead (fundraising + governance) as % of total expenditure
Latest Financial Breakdown
Income Sources
Donations & Legacies £215,000
Charitable Activities £4,637
Other Trading £741,849
Investments £3,632
Other Income £100
Expenditure Categories
Charitable Expenditure £273,201
Raising Funds £698,956
Governance £11,460
Grants to Institutions £0
Other Expenditure £0
Financial Trend
Annual Returns
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £965,218 | £972,157 | £273,201 | £286,517 | £204,096 | 27 / 55 |
| 2023 | £949,226 | £981,812 | £319,628 | £293,456 | £234,105 | 26 / 55 |
| 2022 | £892,298 | £871,856 | £213,198 | £326,042 | £250,769 | 25 / 55 |
| 2021 | £731,979 | £707,107 | £191,943 | £305,600 | £182,130 | 24 / 55 |
| 2020 | £776,427 | £597,500 | £123,356 | £280,728 | £126,144 | 21 / 50 |
Staff column shows: Employees / Volunteers
Details
Address
Alex
The Leukodystrophy Charity
45 Peckham High Street
LONDON
The Leukodystrophy Charity
45 Peckham High Street
LONDON
Email
info@alextlc.orgWebsite
www.alextlc.orgRegistration Date
23 September 2004
Status
Registered
Registry Information
Organisation Number
4009282
Charity Number
1106008
Trustees
LINDA CHRISTINE MILNE
Olivia Bostock
Iraj Idafar
Emma Jane Hadfield-Hudson
Tulsi Sandys-Winsch
Gil Sarig
Nick James Leopold Shiroi
Thomas Dalton
Siriana Baldini
Dr Rahul Raman Singh
Also Known As
- ALD LIFE