Alex, The Leukodystrophy Charity
Also known as: Ald Life
A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.
Activities & Mission
A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £1,077,604 | £1,026,242 | £302,246 | £337,879 | £201,986 | 27 / 55 |
| 2024 | £965,218 | £972,157 | £273,201 | £286,517 | £204,096 | 27 / 55 |
| 2023 | £949,226 | £981,812 | £319,628 | £293,456 | £234,105 | 26 / 55 |
| 2022 | £892,298 | £871,856 | £213,198 | £326,042 | £250,769 | 25 / 55 |
| 2021 | £731,979 | £707,107 | £191,943 | £305,600 | £182,130 | 24 / 55 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Alex, The Leukodystrophy Charity
What does Alex, The Leukodystrophy Charity do?
A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.
How much income did Alex, The Leukodystrophy Charity report in 2025?
Alex, The Leukodystrophy Charity reported total income of £1.08m and reported expenditure of £1.03m for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Alex, The Leukodystrophy Charity registered as a charity?
Alex, The Leukodystrophy Charity was registered with the Charity Commission for England and Wales on 23 September 2004 as charity number 1106008. It has been registered for 22 years.
Who runs Alex, The Leukodystrophy Charity?
Alex, The Leukodystrophy Charity is governed by a board of 9 trustees. The chair of trustees is Siriana Baldini. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Alex, The Leukodystrophy Charity operate?
Alex, The Leukodystrophy Charity operates across 245 areas, including Afghanistan, Akrotiri, Albania and 242 others. The full list is shown on its profile.
Is Alex, The Leukodystrophy Charity a registered charity?
Yes — Alex, The Leukodystrophy Charity is a registered charity in England and Wales, charity number 1106008.
Details
The Leukodystrophy Charity
45 Peckham High Street
LONDON
Registry Information
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Also governs 1 other charity
Also Known As
- Ald Life
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated